For Ben Kjar, his unlikely path to wrestling glory while living with Crouzon syndrome was what he called a “hero’s journey.” Kjar, who was born with the genetic disorder that affects the ...

Standout tells the powerful story of Ben Kjar, born with Crouzon Syndrome, a rare craniofacial disorder. From birth, doctors warn that his life will be overshadowed by limitations. Ben yearns for ...

These mutations disrupt the normal processes of bone formation and repair, leading to conditions like hypochondroplasia and Crouzon syndrome. Despite advancements in medical research, current ...