Vedder's work leveraging the fame and draw of his band's shows for curing epidermolysis bullosa (EB) has been turned into a ...

A couple whose son has a rare genetic skin condition say it is hard to process that a cuddle could "tear his skin". Twenty month old Albi was born with a severe form of recessive dystrophic ...

The profound influence of Broken Social Scene's 2003 debut album You Forgot It in People will be on display anew ...

Former footballer Graeme Souness became emotional on Good Morning Britain as he spoke about a painful illness that is like a ...

Hannah announced on April 8 that Elliana had died less than one year after she was born with a rare skin condition called junctional epidermolysis bullosa (EB), which causes painful blistering.

Pearl Jam frontman Eddie Vedder is releasing a new documentary, “Matter of Time,” this summer on a project he and his wife Jill have been working on to find a cure for epidermolysis bullosa, a ...

Hannah Campbell announced the tragic news of her infant's death on April 8 with a TikTok post shared to over 769,000 ...

Tribeca Film Festival will feature new documentaries about Metallica and Billy Joel and Miley Cyrus’ 'Something Beautiful' ...

Epidermolysis Bullosa may be rare, but through the tireless work of our community, our message is reaching more people than ever. This is more than awareness; it’s an urgent push to cure EB by ...