Trailer: Pearl Jam frontman Eddie Vedder's new documentary, 'Matter of Time, ' raises awareness and funds for epidermolysis ...

As influencer Hannah Campbell mourns the death of her 10-month-old daughter, Elliana Rose, she is also doing her part to fight the disease that affected her baby girl. Campbell announced on Monday, ...

Pearl Jam frontman Eddie Vedder is releasing a new documentary, “Matter of Time,” this summer on a project he and his wife Jill have been working on to find a cure for epidermolysis bullosa, a ...

Vedder's work leveraging the fame and draw of his band's shows for curing epidermolysis bullosa (EB) has been turned into a ...

More serious forms of EB, however, can shorten life spans significantly. Elliana had a severe case of Junctional Epidermolysis Bullosa, which is often fatal. “Severe JEB often takes lives way ...

A couple whose son has a rare genetic skin condition say it is hard to process that a cuddle could "tear his skin". Twenty month old Albi was born with a severe form of recessive dystrophic ...

"Not only is that a skin diagnosis, it is also a life-limiting diagnosis," said Mr Blackman. Epidermolysis bullosa (EB) is ...