News

Her left leg is much bigger than her right due to a gene mutation
She was diagnosed with PIK3CA-Related Overgrowth Spectrum, a group of conditions caused by a gene mutation. Read more at ...
Trailer: Eddie Vedder releases documentary to fight epidermolysis bullosa
Trailer: Pearl Jam frontman Eddie Vedder's new documentary, 'Matter of Time, ' raises awareness and funds for epidermolysis ...
Eddie Vedder’s quest to help cure a rare disease subject of new documentary
Matter of Time,” a documentary featuring legendary rocker Eddie Vedder premiering this fall at the Tribeca Film Festival, is ...
Our son's skin could tear from a cuddle due to rare disorder
A couple whose son has a rare genetic skin condition say it is hard to process that a cuddle could "tear his skin". Twenty month old Albi was born with a severe form of recessive dystrophic ...
Influencer Emotionally Remembers Late 10-Month-Old Daughter Elliana Rose as She Holds Her Funeral: 'Heavy Hearts'
Hannah Campbell announced the tragic news of her infant's death on April 8 with a TikTok post shared to over 769,000 ...