News

On World Haemophilia Day, it's crucial to highlight the overlooked bleeding disorders in women, where stigma, misdiagnosis, and lack of awareness delay proper care and timely treatment.
While haemophilia and VWD are both inherited bleeding disorders they differ significantly Being a rare disease haemophilia is ...
Dr Adwoa Agyemang Adu Gyamfi, a member of the Haemophilia Society of Ghana, has said the nation’s estimated prevalence of Haemophilia, a bleeding order currently hovers around 7,131 people.She said ...
Columnist Jennifer Lynne shares her takeaways from the NOW Conference, which brought together people with VWD and other bleeding disorders.
Itchy skin, or pruritus, can be a symptom of liver disease. However, not everyone with liver disease experiences itching, and the specific causes of this itching are unknown. Treatment for itching ...
California Rare Disease Access Coalition, Hemophilia Council of California, and Plasma Protein Therapeutics Association support AB 725 by Asm Solache ...
Fatty liver disease by itself is unlikely to cause sudden death. However, it can cause complications that can potentially lead to death. The liver is the body’s primary detoxifying organ.
The NSW Government has announced $180,000 in funding to increase access to treatment and support services for people living with macular disease. The one-off grant will support national charity ...
Two significant programs that invested in research on diabetes, dementia, obesity and kidney disease have ended since the start of the Trump administration. By Gina Kolata Robert F. Kennedy Jr ...
Kennedy offered his own answer: “chronic disease,” to which “90 percent of health-care spending” is devoted. He specifically pointed to rising rates of obesity, diabetes, and cancer, as well as ...
I learned it was non-viable and dangerous, requiring termination. However, my medical condition — Von Willebrand disease, a blood clotting disorder — complicated everything. Medication ...
But what many don’t realize is that this figure came from one study of 75 women diagnosed with von Willebrand disease (VWD) who were registered at hemophilia treatment centers. The results were likely ...