U.S. Food and Drug Administration approved Alnylam's drug to treat a rare and deadly heart disease on Thursday, allowing the ...
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inews.co.uk on MSNThe 3.5m people with rare diseases who face worsening treatment and diagnosis ratesRare diseases affect one in 17 people in the UK, but a Government initiative designed to improve their quality of life will ...
Art and science are disciplines that have historically co-existed as polarised entities. However, artists and scientists both ...
Rare diseases - a medical condition so obscure that even your doctor has to Google. Despite their name, these diseases ...
A local family said they now have important answers about their daughter thanks to the work of the Indiana University Rare ...
Jonathan James, CEO, Hope Charities, discusses the critical importance of maintaining access to life-saving medications for ...
Most individuals diagnosed with a rare disease won’t live to become teenagers or adults. I knew what I had to do.
Fostering dialogue between neurologists, researchers, patient representatives, and policymakers is an important step towards ...
Raziel Green, 52, an active runner and mother of two, was diagnosed with a rare form of ALS in 2017. Since starting a clinical trial nearly eight years ago, her symptoms have not gotten any worse.
Prince Frederik of Luxembourg, the youngest son of Prince Robert of Luxembourg and Princess Julie of Nassau, has died after a ...
Rare Disease Day was observed last Friday by a group of volunteers who took an hour out of their schedule to create awareness ...
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