Treatment can consist of tending to the blisters ... Elliana had a severe case of Junctional Epidermolysis Bullosa, which is often fatal. "Severe JEB often takes lives way too soon, and even the ...

Campbell and her family soon moved from Virginia to Maine in order to be closer to family and Elliana’s medical treatment in Massachusetts. Epidermolysis Bullosa is a rare genetic disorder that ...

Vedder's work leveraging the fame and draw of his band's shows for curing epidermolysis bullosa (EB) has been turned into a "powerful" doc.

Influencer Hannah Campbell shared the sad news on TikTok that her 10-month-old daughter, Elliana Rose, who had junctional epidermolysis bullosa, died on Monday, April 7.

Trailer: Pearl Jam frontman Eddie Vedder's new documentary, 'Matter of Time, ' raises awareness and funds for epidermolysis ...

Abeona Therapeutics' pz-cel gene therapy shows the most durable wound healing in RDEB patients. See why I rate ABEO stock a ...

Influencer Hannah Campbell announced the heartbreaking death of her 10-month-old daughter, Elliana Rose, on April 8. Rose ...

The company commercializes VYJUVEK (beremagene geperpavec-svdt, or B-VEC) for the treatment of dystrophic epidermolysis bullosa (DEB). It also develops KB105, which is in Phase 1/2 clinical trials ...

As influencer Hannah Campbell mourns the death of her 10-month-old daughter, Elliana Rose, she is also doing her part to ...

Pearl Jam frontman Eddie Vedder is releasing a new documentary, “Matter of Time,” this summer on a project he and his wife Jill have been working on to find a cure for epidermolysis bullosa ...