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Learning to adapt to constant numbness and tingling in her hands has given columnist Cazandra Campos-MacDonald new insight into her sons.
Columnist G Shellye Horowitz shares the many miracles she's experienced in her life despite living with the bleeding disorder ...
CHMP has advised that Alhemo be approved for people with severe hemophilia A and moderate or severe hemophilia B without inhibitors.
Hemophilia patients have higher rates of mental distress, with physical symptoms like pain and infections playing a role, a ...
Columnist Alliah Czarielle's husband may live with chronic illnesses, but she still has high standards in their relationship.
Columnist G Shellye Horowitz was nervous to visit a new doctor, but says she felt reassured by three comments the ...
The dance in our kitchen hadn’t stopped; it’d only paused. As Julian passed me a warm tortilla, Joe poured a glass of tea, and Caeleb grabbed a few warm cookies, I stepped back into the rhythm of the ...
Columnist Joe MacDonald shares his practical advice for how to help a child define their identity beyond their hemophilia diagnosis.
Columnist G Shellye Horowitz shares tips you can use to support a loved one who may be feeling anxiety due to concerns about hemophilia.
Columnist Jennifer Lynne knows from experience the importance of a hematologist's input when mulling surgery with her bleeding disorders.
Even with two diagnosed bleeding disorders, columnist Jennifer Lynne still hesitates to identify a bleed due to years of medical dismissal.
For columnist Alliah Czarielle's husband, hemophilia demands a slow and intentional life. It's not glamorous, but there is much hidden value.
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