Dec 15, 2018 · I looked up some information on superficial siderosis and found a case where chelation was used to remove the iron deposits that are toxic to the brain and spinal cord and the patient improved and was able to walk more normally again. It didn't seem to be a …

May 31, 2022 · Hi, I have been recently diagnosed with superficial siderosis in the spinal cord and back of brain. Also have some spinal cysts, and possible pseudomeningocele. This was discovered with MRI that I did because of a deteriorating and worsening hearing loss and balance problems over the past 7 years.

Dec 15, 2018 · I noticed your post in an older discussion on Superficial Siderosis which I'm not sure has any active members following the discussion. @herbertli, started this discussion - superficial siderosis and I'm sure would like to hear of your experience and treatment. You mentioned being diagnosed in 2018 and having surgery at Mayo in 2019 and started ...

Dec 15, 2018 · @stevegrinstead, I don't have Superficial siderosis however in my quest for answers to an entirely different health issue I recalled flavinoids for iron overload from transfusions. I don't know if you have already investigated flavonoids so I present them for you to determine their appropriateness with Superficial siderosis.

Dec 15, 2018 · Superficial Siderosis. Posted by alwaysgail @alwaysgail, Dec 15, 2018 . I am desperate to find anyone ...

Aug 11, 2021 · I have been going to PT for dry needling to help the muscle spasms that may be causing a nerve to be trapped. It helps some but enough. I will talk to him about the MFR. Most PTs won’t do anything that manipulates my spine because I have a fragile spine. As a result of the CSF leak, I have Superficial Siderosis which is from my leak bleeding.

Aug 14, 2022 · I also have superficial siderosis (SS). SS can be caused by a continuous leak or a trauma. They have attempted to find the cause in my case . They have found evidence of a spinal fluid leak in the past, but it did not show evidence of a leak presently.

Jan 21, 2018 · Yes, I have had vagus nerve issues for about 6 years now. Mine comes from superficial siderosis. My Dr. advised me to stay hydrated. Don’t over eat, don’t drink alcohol, if you feel an attack coming on rest and keep cool. I hope and pray the best for you

Jun 15, 2024 · Please check for SS, Superficial Siderosis. Please see Dr. Kumar and Dr. Marsh, Mayo Minnesota. AsSo Dr. Levy Mass. General Harvard. If you have SS, and you have an active bleed, you must get it fixed immediately. Please see; MayoClinc/steve GRINSTEAD. Corrections, the operation was 8 hours and I never went back to Minnesota for a follow up.

Sep 20, 2022 · SS is superficial siderosis. Google that. Siderosis will be underlined in red as if you misspelled it. Just keep going. SS is so uncommon. Again, Mayo Clinic Minnesota is the best in Dr. Kumar and Dr. Marsh. Please don’t consult anyone …